You can see I’m tiny but it doesn’t stop me…
Do what you can within the boundaries of your limitations… and then do a tiny bit more!
Socks & Marie xx
May 12th was Fibromyalgia awareness day…
Welcome to my Fibromyalgia awareness day post… yes, a few days late! Why?
Fibromyalgia doesn’t play by the rules! It doesn’t respect you just because you plan to write a post for Fibromyalgia day…
Fibromyalgia is unpredictable and messes with your plans!
But, life still carried on and the world didn’t fall apart. So this is for all who live with Fibromyalgia as a companion …
F athomless, it’s an
I illusive illness, that’s painful & perplex,
B oth ruthless and instructive,
R uins you
A s it
L languishes or livens your soul;
G rab it to you, seek out its gifts
I nscribe your name on it, as you
A chieve your dreams & nothing less!
Mindfully Marie xx
Do you struggle sometimes looking for inspiration for your blog? I know I certainly do, particularly when I’m tired.
You may have heard fibromyalgia being called the ‘holiday illness,’ a very cruel characteristic of fibro/chronic fatigue that, when you ease down from any continuous activity, you then realise you have over-done it. In my case it’s when I’m let go/laid off from my paid contracted Adult Education/Adult Literacy employment. My body crumbles into an exhausted and sometimes lonely mess; if I let it…
When I’m totally drained, having used every tool available to me to manage my fibro/fatigue, such as positivity, pacing and prioritising, I find writing or indeed achieving anything, including socialising is next to impossible but I choose to believe that there is always light in the darkness if you look for it!
So I take encouragement from the words of Pat Schneider in her excellent book ‘Writing Alone and with others.’
She reminds me that…
P.13 “…we will create powerful writing out of the stuff of memory…”
And she tells me…
P.15 ‘…every time you came home from a hard day at school or work and said to someone in your family, “You know what happened to me today?” and told the story – the writer in you was practising using suspense, character, dialogue, metaphor, simile, plot, denouement. All your life, you have been writing on the air, and that has built craft and confidence and voice. It is all there, ready and waiting for you.’
So, I say don’t struggle with tiredness, loneliness or with writing…just reach out in person or via social media, keep sharing your day, keep on “writing on the air.”
So, what do you think? Please join in the discussion below and share what encourages you! Thanks for visiting, your company is another source of encouragement for me!