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Chronic Fatigue

May 12th is Fibromyalgia Awareness Day — Reclaiming HOPE

May 12th is Fibromyalgia Awareness Day. In fact, the whole month of May is dedicated to raising awareness of fibromyalgia. Why is awareness important? Just

via May 12th is Fibromyalgia Awareness Day — Reclaiming HOPE

Today I’d like to share Terri’s post where she has gathered a selection of posts to helps us thrive, not just survive with Fibromyalgia/CFS and she reminds us that

“May 12th is Fibromyalgia Awareness Day.In fact, the whole month of May is dedicated to raising awareness of fibromyalgia.”

What could be more convenient as we continue to raise awareness than having all these dedicated bloggers and their blogs within easy reach!

The month is long, and lockdown longer still so we have the time and opportunity to educate ourselves a little more.  Happy reading and learning.

Le grà,

Mindfully Marie xx

 

In the Face of Fatigue…and Pandemic

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If Doris can face it so can we!

 

To all who struggle with this pandemic or any chronic illness, this is for you, just know you are never alone, you are in the best of company…

 

It crumbles like sand
Overcome by a wave

Stealing your inspiration

Or your power to investigate.

Physical tasks must be trimmed
Right down to the quick,

Mental tasks tease,

Like a shadows in the sun
Now you see me…

now I’m gone!

So quickly it fades,
From functioning… To falter,
What felt like a good day or good hour,
consumed and usurped,
Leaving you literally stranded in the midst of stuff!
It dehydrates your thoughts,
It punctures and deflates,
She has you caught
Laughs and knows she’s fine,

while she has you there,
Then leaves you short
Refusing to repay the debt.

So does it defeat you
Steal from you and
Rob you blind?
Or can you befriend it?
Mould and adjust it?
Even a little at a time?

Well, those are questions you pose
And repose, numerous times each day,
As you show up to a
Battle that could go either way!

And is there an answer
To this piece of arithmetic?
Is there is vacination
That can do the trick?

Well the answer is as fickle
As the ego, when it’s in full play
And it defies all logic
On any given day!

Sadly it’s more complex,
As it’s catching in your breath
And the answers
at best, are really hit and miss!

Some discovered and uncovered
Are a chumley mix of tricks
Such as

Pause… and take a moment, to simply catch your breath…

And with dire warning…

Never, ever, use the words…

‘I expect’…
“Rest,” my Da would say…
“Hold your horses, sweet Marie”

Now I recall his kindness
and cherish his request

I dismount & recoup
Heeding his bequest!

Then like a flame rekindling,
Though; not as quickly as it faded
With a streak of determination
You saddle up again…

A dawn of inspiration seeps in slowly, like the morning sun
And brings with it a power, to investigate anon and

With a steely determination
So worn and battle weary,
You acknowledge your, position or condition
And face the day quite cheery!

And with the wisdom of any moment, being yet again undone
You accept what you can
And leave the rest…

unsung!

To all who struggle with this pandemic or any chronic illness, this is for you, just know you are not alone, we are in the best of company!

Le grà,

And with warm Irish hugs!

Mindfully Marie xx

Fibromyalgia day… is everyday!

 

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May 12th was Fibromyalgia awareness day…

Welcome to my Fibromyalgia awareness day post… yes, a few days late!  Why?

Simply because…

Fibromyalgia doesn’t play by the rules! It doesn’t respect you just because you plan to write a post for Fibromyalgia day…

Fibromyalgia is unpredictable and messes with your plans!

But, life still carried on and the world didn’t fall apart. So this is for all who live with Fibromyalgia as a companion …

Fibromyalgia is…

F athomless, it’s an

I illusive illness, that’s painful & perplex,

B oth ruthless and instructive,

R uins you

O r

M atures

Y ou,

A s it

L languishes or livens your soul;

G rab it to you, seek out its gifts

I nscribe your name on it, as you

A chieve your dreams & nothing less!

 

Le grà,

Mindfully Marie xx

I’ve been working like a dog…

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“Sleeping Beauty!”

 

…well I haven’t really, but sometimes it sure feels like it, particularly when I have a fibro flair or when there is some new or additional demanding situation, such as having my mum in hospital and needing daily visits.  But I’m going to follow Andy’s example, and enjoy my next blissfully relaxing nap!

Do you practice self-care? Do you enjoy a siesta or cat-nap (sorry Andy… dog-nap)?  What do you do to recharge your batteries?

Le grà,

Marie xx

 

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