For almost 19 years I have had to haul fibromyalgia and chronic fatigue around with me. Some days you haul yourself out of bed and the whole day is like hauling yourself up a mountainside. Other days it’s like trying to see through the dense fog that covers that mountainside and it makes your brain function feel like it’s caught in a time-lapse photography project.
But stay positive because there is a plus side! There is a valuable haul of learning that comes from an invisible illness… Never again will you make the assumption when you look at someone that their live is perfect because you know how it feels to be told how great you look despite barely holding it together in either or both body and mind. Similarly when somebody tells you their struggles, you will be well placed to really empathise because you know what it is to struggle. Or when someone tells you they are their own worst enemy or that they struggle to accept their illness, you will be well equipt to understand and having learnt some tips and tricks that eased the journey, you are only too happy to share them if it can ease someone else’s struggle.
So you decide…will it be something you begrudgingly haul with you
Or
Will you treasure your valuable haul and put your learning to good use?
Much love,
Marie xx
April 6, 2018 at 6:36 pm
What a great post Marie! I love that you’ve found the lessons in this!
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April 7, 2018 at 4:39 am
Thank you Terri, as you well know it’s sometimes one step forward and two steps back but also a matter of sink or swim!! I might not be a great swimmer but it’s the better choice!!
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April 6, 2018 at 6:50 pm
I’m not sure exactly how long I’ve had those two conditions per se, since they gradually worsened over time, but I’ve had chronic pain for over 15 years, and that is a long time to suffer 😦
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April 7, 2018 at 4:44 am
Thanks for your visit and sharing your thoughts Marada, it is a complex illness for sure but knowing that many other people are sharing a journey similar to mine gives me a sense of hope and adds purpose to the valuable insights that I’ve learnt. Looking forward to learning more as we journey on together!
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April 7, 2018 at 6:02 pm
Indeed!
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April 7, 2018 at 10:24 am
I feel very encouraged and inspired by your post. I was diagnosed with fibromyalgia in 2009. Your description was spot on, the pain and the fog. I agree wholeheartedly that we can either simply accept our lot, or use what we learn from our struggles in life to encourage and hopefully help others in the same or similar situation. Thanks so much, Marie!
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April 7, 2018 at 2:11 pm
Awe Brenda that’s so lovely, thank you! I’m so glad this spoke to you and I’m humbled to think that I could be an encouraging influence on somebody! Thank you for sharing your story. I don’t think I knew that about you but it makes me feel even closer that we are sharing the same journey. Maybe we have more that we can learn together!
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April 7, 2018 at 2:25 pm
I look forward to continuing this journey with you and learning together in the future dear friend! =)
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April 7, 2018 at 2:05 pm
Excellent post on how to embrace your life as it has been given to you and how to keep a positive perspective on challenges.
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April 7, 2018 at 2:14 pm
Thank you Shelly, I’m so glad you think so. It is a bit of a roller coaster at times with its ups and downs but its all part of the lesson!
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April 8, 2018 at 6:49 am
I totally agree Marie, having FM is a very strange gift but a gift indeed in so many aspects.
Jennifer
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April 8, 2018 at 7:12 am
Hi Jennifer, I think the important thing is realising and being grateful that a step backwards is actually a step forwards! Thanks for your continued connection, I look forward to your visits and conversations!
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April 9, 2018 at 12:04 am
Yes, I always said that to my clients/patients. We may progress 10 steps up the ladder then come back 7 but let’s concentrate on the positive of the 3 gained!
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April 9, 2018 at 1:46 pm
I know you ten years, Marie and I never, ever heard you complain.
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April 9, 2018 at 3:15 pm
Thank you John, that’s lovely of you to say! I’ve had a relapse lately but there’s little to be gained from complaining so I try to focus on what I can achieve and then go home and collapse!!!
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April 19, 2018 at 9:16 pm
Amen, my friend. Noe of us is immune to the tough stuff and me…I definitely treasure the battles. Sometimes they teach me more then I want to know, but they teach me. Gosh I have missed you…
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April 20, 2018 at 5:44 pm
Gosh, I’m glad I wrote this if just to hear you have missed me! I must be writing something worthwhile!! I’m struggling under the haul at the moment but this too will pass!! And everything for a reason!!
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April 22, 2018 at 9:07 pm
Yes, everything for a reason, just stay connected with folks here. #bloggingfamily
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